Episode Chapters
- Lucy In The Sky With Diamonds22:11Living with Cystic FibrosisFree Chapter16:10Paper Chase #1 | Azithromycin does not help viral wheezing5:22Contact Lens Complications21:48Paper Chase #2 | Symptoms of Pertussis in Adults vs Children4:14Pediatric Vaccine Complications16:28What Would I Do Next? | Pericarditis, Part 113:57Paper Chase #3 | Chronic Cough Suggest Pulmonary Pathology3:53What Would I Do Next? | Pericarditis, Part 213:18Excellence in the Physical Exam Series | Elbow Exam8:19Paper Chase #4 | Loop Drainage vs Conventional I&D for Abscess Drainage3:59Shoulder Dislocations18:58Carbon Monoxide Toxicity12:59Paper Chase #5 | Patient Navigators for ED Superusers5:57The Summary14:56
Living with Cystic Fibrosis
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Mizuho sits down with Claire Wineland a patient with Cystic fibrosis to learn what it is like to live with a chronic progressive terminal illness. Claire opens up about her experience.
Pearls:
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We can help patients with terminal illnesses realize that they are not bound by their disease and can find meaning in life beyond just getting well.
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Claire Wineland is 20 year-old nationally renowned public speaker with cystic fibrosis
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She has spent nearly a quarter of her life in hospitals and now offers powerful insight into what it is like to live with a terminal illness
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Healthcare workers tend to view patients in terms of their illness (i.e. the 9-year-old with appendicitis)
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Patients with terminal illness can find empowerment through study and ownership of their own illness
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Taking ownership of one’s physical space in the hospital (i.e. decorating a hospital room) can create a safe and comfortable environment
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Doctors should encourage patients to create space to live a rich and fulfilling lives outside of the treatment of their disease and to discourage fixation on just “getting better”
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It does a disservice to our patients to support the idea that one cannot live a fulfilling life until they are healthy
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We can help terminally ill patients realize their dreams in the time that they have left because there may never come a time where their disease is better than it is right now
Douglas S. - December 1, 2017 6:22 PM
This was an amazing segment. My first clinical rotation as a physician assistant student was general surgery. I was extremely nervous and admittedly scared a little. Early during my time there I met this wonderful cystic fibrosis patient. I would end all of my evening rounds with her room so I can spend time just talking to this wonderful person. With her wealth of medical experiences and relaxed attitude I believed she helped me relax and learn to talk with the patient as a person and not just define them as their disease.
Mike W., MD - December 2, 2017 6:29 AM
Great story - I remember so many patients from my early years - what an impact they have made on all of us!