Episode Chapters
- Tattoos & Piercings17:01Iron Toxicity30:06Paper Chase #1: Occipital Headaches6:17Living With Cystic FibrosisFree Chapter16:04Billing for Procedures, Part 112:31Paper Chase #2: Physician Ratings8:56Billing for Procedures, Part 212:44Dietary Supplement Dangers6:38Paper Chase #3 & #4: Media Devices, Sleep and Diabetes10:38Juvenile Myoclonic Epilepsy15:07New Pediatric Hypertension Guidelines, Part 120:33Paper Chase #5: Probiotic Supplementation6:41New Pediatric Hypertension Guidelines, Part 220:34The Summary17:51

Living With Cystic Fibrosis
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Mizuho sits down with Claire Wineland a patient with Cystic fibrosis to learn what it is like to live with a chronic progressive terminal illness. Claire opens up about her experience.
Pearls:
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We can help patients with terminal illnesses realize that they are not bound by their disease and can find meaning in life beyond just getting well.
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Claire Wineland is 20 year-old nationally renowned public speaker with cystic fibrosis
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She has spent nearly a quarter of her life in hospitals and now offers powerful insight into what it is like to live with a terminal illness
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Healthcare workers tend to view patients in terms of their illness (i.e. the 9-year-old with appendicitis)
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Patients with terminal illness can find empowerment through study and ownership of their own illness
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Taking ownership of one’s physical space in the hospital (i.e. decorating a hospital room) can create a safe and comfortable environment
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Doctors should encourage patients to create space to live a rich and fulfilling lives outside of the treatment of their disease and to discourage fixation on just “getting better”
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It does a disservice to our patients to support the idea that one cannot live a fulfilling life until they are healthy
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We can help terminally ill patients realize their dreams in the time that they have left because there may never come a time where their disease is better than it is right now
Zoey G. - February 1, 2018 9:56 AM
this is great!