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Navigating Neglect & Priapisms

Brett Murray, MD, Anne Steckowych, APRN, Kelly Heidepriem, MD, Julia Magana, MD, and Samuel Goldman, MD

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The summary below is from an episode of ERcast: Clinical Perspectives

Parental refusal becomes medical neglect when a child's basic needs are not met and the decision creates serious or imminent harm. Priapism is a time-sensitive urologic emergency once an erection lasts beyond 4 hours, with ischemic cases threatening permanent erectile dysfunction if treatment is delayed.

Pediatric AMA and Medical Neglect

  • Early expectation setting: Set expectations during the initial encounter by naming the concern, likely next steps, and rough timing; that simple upfront framing often prevents later AMA escalation.
  • Objective risk communication: Concrete findings like oxygen saturation, heart rate, imaging, or exam abnormalities make risk harder to dismiss than vague warnings and keep the conversation anchored in the child's physiology.
  • Professional interpreter use: High-stakes disagreement across language barriers deserves a hospital interpreter, even when conversational English seems adequate, because subtle medical nuance is where these cases turn.
  • Neglect versus bad choice: The threshold is not a merely suboptimal decision; concern rises when the plan fails the child's basic needs and creates serious or imminent harm. The gray-zone examples are worth hearing in the episode.
  • Escalation for imminent danger: Security, CPS, law enforcement, and hospital counsel enter when leaving would place the child in immediate danger, but those steps should reflect true risk rather than serve as leverage.
  • Shared decision documentation: Document the parent's understanding of condition, risks, options, home resources, and follow-up; a careful note often matters more than an AMA form when the alternative plan is reasonable.

Priapism Emergency Evaluation and Treatment

  • Ischemic versus nonischemic split: Priapism management starts with one fork: ischemic disease is compartment syndrome of the penis, while non-ischemic priapism is usually less rigid, less painful, and often trauma-related.
  • Four hour danger point: An erection persisting beyond 4 hours should be treated as time-is-tissue because progressive hypoxia and acidosis can fibrose erectile tissue and leave permanent dysfunction.
  • Bedside diagnostic clues: Rigid pain points toward ischemia, and dark viscous blood on aspiration with a low-pH corporal gas is the objective tiebreaker when the history and exam are equivocal.
  • First line bedside therapy: ED treatment should not wait for urology: corporal aspiration and irrigation plus intracavernosal phenylephrine is first-line, and the stepwise setup is laid out in the episode.
  • Phenylephrine headline dose: Phenylephrine 100 to 200 mcg every 3 to 5 minutes is the key medication, with blood pressure and rhythm monitoring for hypertension and reflex bradycardia.
  • Specialist escalation point: If detumescence does not occur after a reasonable bedside attempt, usually about 30 to 60 minutes, it is time to hand off for shunt-level rescue rather than keep repeating the same maneuver.

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References:

  1. Weaver MS, Morreim H, Pecker LH, Alade RO, Alfandre DJ. Pediatric Discharge From the Emergency Department Against Medical Advice. Pediatrics. 2022 Jan 1;149(1):e2021050996. PMID: 34972220.
  2. Evaluation and Treatment of Minors. Paul Ishimine MD, Ashley Foster MD, Ann Dietrich MD, et al. American College of Emergency Physicians (2021).
  3. McDougall RJ, Notini L. Overriding parents' medical decisions for their children: a systematic review of normative literature. J Med Ethics. 2014;40(7):448-452. PMID: 23824967.
  4. Seltzer RR, Thompson BS. Pediatrician as Advocate and Protector: An Approach to Medical Neglect for Children with Medical Complexity. Pediatr Clin North Am. 2024 Feb;71(1):59-70. Epub 2023 Sep 19. PMID: 37973307.
  5. Winters JP. When Parents Refuse: Resolving Entrenched Disagreements Between Parents and Clinicians in Situations of Uncertainty and Complexity. Am J Bioeth. 2018 Aug;18(8):20-31. PMID: 30133394.
  6. Talati ED, Lang CW, Ross LF. Reactions of pediatricians to refusals of medical treatment for minors. J Adolesc Health. 2010 Aug;47(2):126-32. Epub 2010 Apr 28. PMID: 20638004.
  7. Alessandri AJ. Parents know best: or do they? Treatment refusals in paediatric oncology. J Paediatr Child Health. 2011 Sep;47(9):628-31. PMID: 21951447.

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